Incyte Supports the Myeloproliferative Neoplasm Community in Honor of Rare Disease Day 2018
MPN Heroes® 2018 nominations now open for submission
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“Today we join hands with patients, physicians, caregivers and advocates to honor those with rare diseases across the globe, including the 200,000 individuals in the U.S. living with a group of rare blood cancers known as myeloproliferative neoplasms (MPNs),” said Hervé Hoppenot, Chief Executive Officer,
This year, as part of its ongoing efforts to raise awareness of MPNs,
“Beyond Blue,” the first short film released in the series, tells the story of Barbara, a woman who was diagnosed with an MPN over twenty years ago. Barbara’s experience shines a light on how people living with a rare disease may experience unseen symptoms, or, as Barbara puts it, “the 80-pound invisible blanket” that she carries. To watch “Beyond Blue” visit www.VoicesOfMPN.com/documentaries.
“I’m hoping this film will help others understand the many different aspects of living with a rare disease, tell them about what might be invisible to the eye and to empower patients to have better conversations with their doctors and their loved ones in an effort to live their best life and live out their own stories,” said Barbara.
Rare Disease Day also marks the opening of nominations for the 2018 MPN Heroes® Recognition Program, which honors the individuals and organizations that contribute to bringing understanding and strength to those living with MPNs. Now in its sixth year, the MPN Heroes Recognition Program is sponsored by
MPN patients can stay connected and informed about MPN awareness activities on Rare Disease Day by “Liking” the “Voices of MPN”
About Myeloproliferative Neoplasms
Myeloproliferative neoplasms (MPNs) are a closely related group of blood cancers in which the bone marrow functions abnormally.i The bone marrow is where the body’s blood cells are made. There are several types of MPNs, which include MF, PV and ET.i MPNs are progressive blood cancers that can strike anyone at any age, but they are more common in older adults. Estimates of the prevalence of MPNs vary, but analysis of claims data suggests there may be as many as 200,000 people in the U.S. living with MF, PV or ET.i
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View source version on businesswire.com: http://www.businesswire.com/news/home/20180228005406/en/
Source:
Incyte Corporation
Jenifer Antonacci, 302-498-7036
jantonacci@incyte.com
or
Catalina Loveman, 302-498-6171
cloveman@incyte.com
or
Elliot Fox, 212-257-6724
efox@w2ogroup.com