Incyte Joins Patient Organizations Worldwide in Recognizing Rare Disease Day 2019
The MPN community is encouraged to participate in awareness initiatives and access new resources at VoicesofMPN.com.
“Incyte is committed to making a meaningful difference in the lives of
the estimated 200,000 individuals in the U.S. living with a group of
rare, progressive blood cancers known as MPNs, as well as those impacted
by other serious rare diseases,” said Hervé Hoppenot, Chief Executive
This year’s Rare Disease Day theme, “Bridging Health and Social Care,”
acknowledges the complexities that people living with rare diseases
often face when trying to balance care-related tasks – which can include
taking medicines, attending appointments or participating in physical
therapy – alongside their daily activities, such as work or school.
Inspired by this theme,
- Tune into tonight’s Facebook Live: Anyone impacted by MPNs is
invited to participate in Voices of MPN’s and Incyte’s “Ask an MPN
Expert” Facebook Live, where two oncology clinical nurse educators
Incytewill discuss the importance of tracking your MPN symptoms and be available to answer questions you may have about MPNs. The Facebook Live Chat will begin tonight, February 28, 2019, at 7:00 p.m. ET. Join the conversation here.
- Actively participate in your care: Voices of MPN has made enhancements to its MPN Tracker Tools to help those impacted by an MPN track their symptoms, blood cell counts and procedures – as well as set individualized blood count targets.
- Learn about your disease: Learn more about living with an MPN and access useful information about MPNs by reviewing the MPN Patients’ Bill of Rights at http://www.mpnresearchfoundation.org/PBOR.
- Nominate your MPN Hero:
Incytecontinues to sponsor the MPN Heroes® Recognition program – in collaboration with CURE Media Group, publishers of CURE® magazine – which honors the individuals and organizations that contribute to bringing understanding and strength to those living with MPNs. In honor of Rare Disease Day, the nomination period for the 2019 MPN Heroes program is now open, and nominations are being accepted through September 12, 2019. To learn more about the program or to submit a nomination, visit www.MPNHeroes.com.
About Myeloproliferative Neoplasms
Myeloproliferative neoplasms (MPNs) are a closely related group of blood cancers in which the bone marrow functions abnormally. The bone marrow is where the body’s blood cells are made. MPNs are progressive blood cancers that can strike anyone at any age, but they are more common in older adults. Estimates of the prevalence of MPNs vary, but analysis of claims data suggests there may be as many as 200,000 people in the U.S. living with the most prevalent MPNs: myelofibrosis, polycythemia vera or essential thrombocythemia.1
MPN Heroes and Voices of MPN are registered trademarks of